Last night Declan had his sleep study. It was actually his second appointment. The first one (Nov. 4th) was a total bust because two hours into sleeping he threw up so they didn't want to continue, understandably... but boy did it SUCK to have to wait another 2 weeks to get things worked out. However, having the two studys, even though the first was only two hours, gave us some results to compare. In the first one, he did not have the cpap on and the results were so erratic. His heart rate and oxygen levels were up and down since the apnea never allowed him into a deep sleep. Last night he was put on cpap and he did WONDERFUL. He finally for the first time in at least two months had REAL sleep. Possibly even longer bcause he has always had a snoring problem. Last night's results showed all the stages of sleep and it even showed that he had 5 dreams. I don't know why, but to actually KNOW that my little boy's mind had 5 little stories running through there is really cute to me lol.
It was also the first time where he was Quiet when he was asleep, like i said, he had always had a snoring issue. I guess this whole thing might be called a blessing in disguise, to finally fix the problem since it might be the culprit for some of his lack of development in some areas as well as some of his unpleasant behaviour. I'm looking forward to seeing it all pan out.
The dr wrote out a perscription for the cpap machine that we'll need to get for home. The GOOD thing is that rob's work insurance covers a hundred percent up to $2000 for the cpap machine (the most expensive one is approx a hundred or so more than that) and $400 for the mask (that we can get new every 12 months). We are very lucky about that. The bad news is we need to pay for it out of pocket first lol.
Declan will still be getting the tonsil/adnoid removal surgery Dec 2nd just to get them out of the way. SOOOOOOoo looking forward to everything going back to normal and getting Declan back to school which won't be happening until about a week or so after the surgery.
A part of me thinks that Declan needing to use a machine to breath at night really sucks! I mean, he has already had a rough go of things, why does he need this? BUT.. then i tell myself it could be a LOT worse. There was talk of his getting a trach (again) which scared the SHIT out of me.. i do NOT want to go through that again nor have Declan go through that again. SO i guess the breathing machine trumps that by far!!
Anyways.. i thought i'd jump right in and start back writing about my life as it's happening, which is the reason i wanted to blog in the first place. I will eventually get around to the requests, but i guess i need to be in the mood for them.
Lori.. i have already written about how Rob and i met so i hope you don't mind that i don't write a new blog on it :) It's in the label Remembering the past if you would like to read it.
WOW!!! I just looked through some of my older blogs and in the label "goals".. where i have listed several goals i wrote out for 2009.. i have not done ONE of them!! How disgusting is that? I think i may have to reiterate those goals for 2010 and i think writing them out and posting them on my wall over my desk might be in order!!! I am really dissapointed in myself. I totally forgot about that post and the goals in general.. but wow. Not even one! lol
Friday Night Confessions
6 hours ago






